Everyone Loves Little Angels’ mission is three-fold, and simply about “paying it forward”.
The first part has to do with the promise I made myself as Ella was hospitalized and we could not figure out what caused the end-stage emphysema on her lungs discovered when she was not even 3 months old. It became the second most important part of my day, second only to spending every one of Ella’s waking minutes loving, singing, playing and motivating her to live. When she slept. I focused on discovering what she had, so that one day, we would help another family facing the same symptoms. Today, this means raising awareness and bringing together families affected by Periventricular Nodular Heterotopia (PVNH).
The second part of ELLA’s mission was inspired by the work of others who paid it forward when Ella was hospitalized. A friend’s cooking, strangers offering gifts and attentions to help us through the days, a shoulder to cry on when I could no longer hold it together…
The third part is simply put, a direct result of Ella not surviving. After she died, I realized how few resources there were out there for parents who lost a child – whether unexpectedly or from a life-threatening condition you saw coming. I had to create my support system to survive. I therefore want to ensure no other parents goes through what I have gone through and feels alone and abandoned after going through the most horrendous loss.
So again, ELLA’s mission is simple: to pay it forward.